May 05, 2009 @ 06:21
It is hard when you don’t have what you need to do what you should. Sometimes it’s patience, sometimes it’s permission, sometimes it’s give-a-damn. But sometimes the very people who make your head want to come off, give you what you need to keep it squarely on your neck for one more day . . . or you manage to wrestle it up from the bottom of your barrel with bare white knuckles yourself. I haven’t whined here in a while. It’s not because life got perfect, I promise. We’ve got the IEP (Individual Education Plan) meeting at Puppy’s school this week. And I got the report back from the developmental center big visit last month in the mail a few days ago. All of the things we cling to, words like mild and high-functioning . . . Well . . . this report was specific. It gave us hard numbers. On a scale of 1 to 10 kind of numbers. You know in your head you can think “oh it’s just fine”. He’ll be one of the lucky ones. When he’s a grown up, if you didn’t know, you’d never know . . . but . . .
Now I don’t know if that’s true at all. Because all of his numbers are firmly on the scale. Every one of them. Exactly in the middle. Words that you formerly thought of as qualifiers now feel hard and cold. Like threshold . . . It only sounds like a tiny first step when you aren’t looking back over your shoulder for it. Denial is no longer an option. But I know I already knew. I knew! I knew the diagnosis. I knew it knew it knew it! I thought I was through grieving it. But I guess I wasn’t. And the past couple of weeks have been really tough. He’s been hard. The new meds make it harder for him to go to sleep at night. He’s not down until nearly eleven every night. I wait until the very last minute to wake him each morning to make sure he gets at least 8 hours in. But that makes things hard in other ways. He cannot be rushed. And it’s not his fault. And I’m sucking at the whole patience thing lately. Finding myself clenching my fists at my sides and counting to ten far too often. Having to walk away because I don’t want to scream at him. You know I can’t watch Monk anymore. Because it’s not funny now . . . And I’m. Angry. For him. For me. For Bear. Just a couple days ago Bear was talking about something that he wanted to do while he is in college. And it was pick up Puppy from school every day. All I can think is wow. What a kid. And dammit. Why should he have to think like a grown up right now. I don’t even want to do that and I’m the grown up. I don’t want to think about how this might affect the rest of my life and I don’t want to think that Bear is adjusting his future for it, too. I want my biggest worry to be thinking about Bear on some far away college campus someday. Not that he chose a school at home to help take care of us . . .
I swear, in spite of everything I just said, I’m happier right now than I’ve ever been in my adult life. I’m in love with my kids, my friends, my house, my job . . . Bear is a miracle and makes it all easier. But I admit it, I just need a break, or maybe just a half of a break . . . Puppy needs and deserves it. And I don’t want to sit on my back steps every night after the boys go to bed, staring at the sky and praying for patience. I’d rather just be staring at the sky.
These are some things that held me together this past month.
1. Puppy’s observations . . . driving past a bike trail at a local University, “See that trail, Mommy? It leads to adventure!” Or regarding the carton of organic milk with the happy cow picture on it, “Mommy, this is Cow Nog!”
2. The fact that Puppy has slipped back into calling my Mommy and not just Mom. I am so grateful.
3. The ability to mostly keep my mouth shut when I ought to . . . despite . . .
4. . . . the occasional slip.
5. Over-sharing with Sharon.
6. Cooking two giant slabs of salmon and getting it right.
7. Mint Juleps.
8. Bear.
9. Bear.
10. Even with stinky teenager feet . . . Bear.